Workshop 2: Ethical issues in participatory research.
Delivered by: Professor Sarah Banks, Michelle Brear, Pradeep Narayanan, Pinky Shabangu
When: Monday, 13th June, 9.30 – 12.30 via WebEx (online).
This session will explore the nature of ethics and some of the key ethical challenges in participatory research (e.g. relating to power, partnership, activism). We will look at key ethical principles underpinning PR, ask whether they are universally applicable, and look at some case examples from Eswatini and India in break out groups.
Sarah BANKS is Co-Director, Centre for Social Justice and Community Action and Professor, Department of Sociology, Durham University, UK. The Centre promotes participatory action research for social justice in partnership with community-based organisations. With the Centre and members of the International Collaboration for Participatory Health Research (ICPHR), she has developed ethical guidelines for participatory research and offers training/events for academic and community-based researchers. She has coordinated several participatory research projects, including research on debt, poverty and community development, and leads the Ethics Working Group of the ICPHR. She is co-editor of Ethics in Participatory Research for Health and Social Well-Being (2019) and Co-Producing Research: A Community Development Approach (2019), and co-author of Participatory Research for Health and Social Well-Being (2019).
Michelle Brear is a research associate at Monash University (Australia) and University of Johannesburg (South Africa). She is a public health social scientist with a special interest in designing and implementing workshop-based approaches to facilitate the participation of lay-people in research, and using ethnographic methods to document the process and outcomes of their participation in research. Michelle’s research in communities marginalised by poverty in southern Africa has provided insights about ethical issues in PHR such as equity, autonomy and benefits sharing. It has been published in a series of articles in international health, development and methodological journals including Qualitative Health Research, Global Public Health and Sustainability Science.
Pradeep Narayanan is Director, Research, Praxis Institute for Participatory Practices, New Delhi, India. He is a practitioner of participatory methods and approaches. He works on Participatory monitoring and evaluation with community mobilisation, ethics, child rights and bonded labour as themes. He co-created India Responsible Business Index, which focuses on social inclusion in business practices. He is Honorary Fellow, Department of Sociology, Durham University, UK; and serves on the International Advisory Board of the Community Development Journal. He is also Member, Core Committee on Business and Human Rights, National Human Rights Commission. With Tom Thomas, he co-edited the book, Participation Pays: Pathways for Post 2015.
Pinky Shabangu started her research career in 2012 as a community-based co-researcher and activist in a PHR project in the rural community in Eswatini where she was born. Since then, she has pursued her own tertiary studies and worked as a research assistant, in a role that has enabled her to reflect on and write about her experiences being a community researcher. This has enabled her to link ethical issues in Participatory Health Research including the ethics of care to all ethical moments which occurred when she was a community-based researcher. She has a particular interest in social research, particularly about gender issues, women and children’s health and development in the Global South.
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